Wednesday 23 December 2015

CRPS is a nerve condition -my nerves are damaged <your head will be too if you keep rolling your eyes>

I was sledging in the second week of January 2010 and hit a tree...I broke my right ankle (a spiral fracture) I was put in a cast that did not allow for the swelling of the leg and caused my toes to turn black...

In a nutshell, I ended up in plaster for SIX MONTHS and now I walk with a boot and a rollator. 

Realising 6 years is nearly upon me is galling. I've waited on hydrotherapy and physio from the NHS but I seem to slip through every net. The accident happened when I was 25...I'm now 31 and my mental health has taken a massive knock. I'm desperate to walk again without a boot and aids. Nobody knows what CRPS is when I have to sit after less than 10minutes of being up a great many people will roll their eyes and I've even had several people comment on how lazy I am and how I am not helping myself...

My hied is busting!

Monday 7 December 2015

My soul is sad

IF YOU CAN READ THIS...

•you've had the benefit of education (even if you didn't make the best of what you had at the time you had there);

•you have access to the Internet;

•you have some device on which to access this (or access to a device);

•you are LIKELY to have access to money, food, healthcare -even if you wish it were more, better or more quickly;

•you're POSSIBLY able to express your opinion (even if it's under a pseudonym online or only with peers);

•you can see (or possibly only hear) this...(some people never have had these gifts we take for granted too easily);

•you are breathing (even if it is with equipment to help) -we too easily forget some have never made it to their FIRST breath, some parents have never got to hold their baby/babies...some fathers have never known of their children...others have never cared and left scarred and broken children...some children may have been left by both;

...YOU ARE LUCKY!

~^* Luckier than more than 3/4 of this world AT LEAST...
(I do not like to use sweeping statements or percentages that I haven't researched... I KNOW the percentage is, however, higher than the one I have have used) *^~

My heart breaks for this world and the sadness in it.

Wednesday 4 November 2015

War poppies and crying

My grandfather was in the navy and spoke to me on only two occasions about his experiences - I had one of these brief discussions with him in my late teens, after having visited battle fields and memorials, having walked in trenches and down the holes in the earth from canon fire, having cried at the playing of the Last Post at Meningate... for the sixth time in my life. Forcing poppy wearing is, quite frankly, in my honest opinion, idiotic and I have (thankfully) never come across anyone who holds this view. I hadn't even heard of groups wanting this to be a requirement until only a few hours ago!!!

It would, surely, lead to ANY meaning behind it becoming lost on a sea of poppies??!!!

War is ugly.

Making the poppies with pretty Swarovski crystals that were profits do not go to the place where the origins of the poppy being made?? That would be greed on the part of someone else - the way so many fights and wars start...

And this 'pretty poppy'?
It does NOT make ANY war ANY LESS ugly.


**

For me, the red poppies symbolise the bloodshed, the lives lost and wasted, the pain and heartache, the worst of human nature; 
A white poppy to me is...- for a future of peace one day...

I hope the world finds peace one day before humandkind completely destroys the land on which they rely for life.

Thursday 29 October 2015

Calming down now

I was having an 'OK' day then my sister was tremendously horrid (I was trying to open a bag with a baby grow inside it for my niece - her girl) <having dexterity problems nowadays>
...she snatched it from me, I thought, for a second, to help me...
and threw it across to the other side of the room (bearing in mind I then couldn't reach it AND she had already put my crutches somewhere 'out of the way' where I couldn't reach...she said I was making too much noise over the tv...

Inside was a gift for her baby and I was checking there wasn't a receipt etc...

I crawled to get my crutches and left in tears.

I'm just in the way.

I've fought for HOURS since leaving hers to stay safe.

I'm not sure I can do things without her -she knows this and will ask for money in a roundabout way and in such a way that I cannot say no.

She saw my bank app...

I can't even.

I just can't.

Saturday 17 October 2015

Friends and being a rubbishy one

I've spent FAR too many hours crying over how much of a letdown I am to everyone...

I've completely melted down and caused myself physical harm over these intense feelings.

Social anxiety has crippled me and I don't like to go outside AT ALL anymore...

I had a friend I drove LOTS of places and messaged CONSTANTLY then she got a new boyfriend and I've had my car taken back by the powers that be...

This has ONLY JUST occurred to me...I realise that people have probably experienced this several times over prior to reaching their 30s but I haven't...
I melted again today...

I have no fresh food again and I'm just a total burden everywhere ...

I wasn't able to ask for help at first l, then I was...now I can't again and as stupid as it may be, well, it bugs me to high heaven that people nearby NEED me to explain EVERY TIME when I need help, or...well, food...

I mean...

I could scream...

In truth, I'd rather scream than feel how I do inside... I feel like I'm on fire inside...

Borderline personality disorder makes me feel too much at once and then I switch off to get by and not self harm or shout at the wrong person (that would be everyone... I'm a nothing.)




Wednesday 12 August 2015

denied Holy Communion by priest

Last weekend (after attending Holy Mass but being unable to manage to Holy Communion ...I have mobility issues and visual impairment...-and none of the 5 Eucharistic Ministers noticing, nor the Priest...) I asked for Holy Communion after Mass and was told nope...went to car had a greet with 12&7 year old nieces I'd brought, went back in -composed- and was flat out told I was not "in my place" and to "stop arguing" -I wasn't, I just wanted to know the logic behind it ESPECIALLY given that week's Gospel
AND you want to have heard the homily...which I did...twice...

I went to evening Mass -he couldn't even look at me.

Didn't go their this weekend...

I swear -I must be made of see-through stuff or look like I'm bringing a bad reputation to Christianity ... Ostracised much??!!!!

I used to attend daily -morning prayer and Holy Mass.
And from 3 to 28 never missed a single Mass or holy day of obligation and canted the Masses... Sometimes 4 a weekend...

I feel as though I'm being made to feel like a nothing...I have tried to offer the only thing I can (my voice..but no longer do now)

My heart is breaking.

My self harm is even worse than ever and now I've come clean with my psychiatrist about having switched to a hammer because bruises are easier to explain away...

Tuesday 28 July 2015

medical review / assessment

I have no idea how in going to be around still in 2 days...

I can't see how I can ... Agoraphobia and social anxiety aside, plus 3 bruised ribs (don't even ask! In a nutshell i fell over the not assembled double bed the consierge put in my bedroom so they didn't have to put it into storage -apparently that's my flat's job!)...
So now I have a chest infection because I can't take deep breaths... Mnyargh...

Honestly! You can't make this cr@p up...

Plus the USED mattress came with 'friends'... Boalk!!
Poor cat needed washed -TWICE!!!

They wonder why I think they're all out to get me!?????

They have also waited til my mum and dad are out of the county to have this assessment!!!

10 days they're not in the UK... I swear to flarfinyarf!!!!

Sorry folks...

Had to vent somewhere...

Maybe someone can smile at this...

Tuesday 23 June 2015

Assisted suicide - I am suicidal - do not legalise this!

I am a mess...

I cannot cope the way others appear to...is we time wearing a mask??!!

Am I the only one consumed with thoughts of suicide constantly??!!


Just sent this to my local MSP... For the proposed bill that is to be voted on in the UK in September for "assisted suicide" ...

Yes, I am often suicidal, but believe it or not I AM COMPLETELY AGAINST THIS BILL BECOMING LAW!!...

Here's what I sent...

"Dear Natalie McGarry,

FIRST DO NO HARM... Nuff said!

***

Guess what folks...life is terminal...
(It is nearing 1am so forgive me if I don't word this eloquently but I am in...pain...doesn't quite describe how sore I am just now...) <I have several medical conditions which impact on my breathing, vision, ability to feel things I touch, pain management (or lack thereof), walking, nerve damage, incontinence... It goes on and it ALL feeds into my mental health having taken a nosedive something terrible!!! - I am 30... I never expected much but by golly i never anticipated this!!)
***
If this were legal here, right now, where I am (which is currently in a hospital bed in Scotland)...
I WOULD CHOOSE IT...
Do NOT LET THIS PASS FURTHER THAN IT HAS -open your eyes...it is murder...
***DO NOT HELP ME and others like me MURDER ME...***
I fight suicidal thoughts enough as it is without having a "right" to die act brought out...
...It would become an OBLIGATION...
Yes, it IS that black and white...
LIFE vs DEATH!"

Thursday 4 June 2015

Still here

meh... Couldn't leave someone to find a body -that's just...

i hate me.

So i hurt me instead....seemed lesser of 2 evils....

But then, i still live -that's the greater evil isn't it?

Angel

i won't get to be one.
Wish it had been meningitis or sepsis last month.
That was my only hope.

Mea Culpa-as always ... Never lend money

Nobody can help -my sister now has four babies and I owe her £50, I owe my cousin £70...and -£600. I messaged the person whom I leant lots of money too...but she hasn't anything.

I messaged my friend (well I don't think she is my friend anymore since she got her new fella and finished learning to drive and, well, she has lots of good people building her up...doesn't need me tearing her down) but i text to ask if she'll take care of my cat. He has some food and is a good boy really. He shouldn't be too much of a burden. Someone will take care of him. Someone nice. Even if she can't.

Maybe my friends Sam and David could. I can't message anyone now thogh. The police will come.


Friday 8 May 2015

Complete meltdown-again...

I really can't go out...it's beyond what it was... I've managed 2 physio appts and some of my psychiatry ones since my gran passed away...
But this week??... I have weight Managment AND physio AND benefits firm thing to fill in with a stranger who is coming to my flat AND I'm giving a talk on how wheelchair rugby has impacted my life for the better...IN THE FECKING EMIRATES STADIUM ON WED!!!! (There will be an unknown number in attendance-they're just saying that so I don't freak out...) but I am no longer doing ok...once I get to rugby i am...eventually...and I can vent in a better way than hurting me... And in a socially acceptable way...

But, I just feel like I'll be the biggest liar out!!!



***


I have, sadly, returned to hurting myself ...



***


I have been really rubbish since my gran passing away...pretty much cut myself off from everyone -(including myself); I didn't do it intentionally...

Outside is... Expensive?

Get out to do what though...fall over and cause scenes everywhere?...I just... My head is sooooo beyond fixing I think


I keep needing to sit and am such a snappy bitch to be round...my pain management meds were changed and THE DOCTOR DIDN'T TELL me?!!! The actual fk?!

I'd tried to put up with it thinking I was being a wimp and what not and when we discovered that (only after a bad fall when I couldn't move my arms or neck properly and A&E said "no you're not on that med"...
Mum wanted to go to GP, sis promised she would...just like she said we'd go swimming once a month 5 years ago...we've been twice...

I keep wetting myself and can't be bothered fighting anymore -according to different folks this isn't anything to worry about...

Yeah sitting in towels on the floor or couch or wherever is fine -it happened in a cafe with my sister once... I made my excuses, left and didn't go outside for over a week -and I'm still weary of delivery drivers or using that service for food incase they stick in 'alternatives' etc...

I give up fighting

I'm too much work for anybody I know that

Just "going with the flow" whatever happens does or doesn't...

I'm not bothered ; but I must be or I wouldn't type this...hmmm...

Monday 30 March 2015

Hidden Mental Illness IT'S A REAL ILLNESS!

***from huffington post blog...incase they move or remove it***

"Would We Be 'Blaming' Cancer for the Deaths of Those People Who Perished in the Alps?

If pilot Andreas Lubitz was so profoundly depressed that he could not function normally then clearly he should not have been flying. If he had been in the throes of a psychotic meltdown - and the signs would have been fairly evident before he entered the cabin - then likewise he should have been nowhere near the controls of a busy commercial aeroplane. If, if, if ...
But, but, but... We don't know. And certainly the editors who casually threw up headlines about a madman in a cockpit, or asked in huge print 'why was he allowed to fly?' don't know. All they knew - based on evidence found by the police in his flat and briefed to the media - was that there were torn up sick notes there and that he had been ill in 2009. They thought they knew that the illness was depression yet I have seen German media and the BBC reporting denials of this from official and credible sources.
So the long and the short is... We don't know. The papers didn't know. But they chose to decide the truth without knowledge.
Now it may be that it turns out he was a depressive and those same papers will say 'ah, we told you so, we were right to run the headlines we ran.' To which the answer is 'no you weren't.'
If he had just been told he had cancer, and a note to that effect had been found, would we be 'blaming' cancer for the deaths of those poor people who perished in the Alps?
Because it is bad enough to run such headlines not knowing them to be true. It is just as bad if it was true that he was being treated for depression. Because what the media coverage does is say not that the awful murderous act was committed by a human being, but by an illness. If he had just been told he had cancer, and a note to that effect had been found, would we be 'blaming' cancer for the deaths of those poor people who perished in the Alps? Or, more likely, might we be headlining on the sad cancer secret of German pilot? If he was an asthmatic who was suddenly - his co-pilot having taken a break or gone to the lavatory - overcome by an uncontrollable asthma attack which had him writhing on the ground, would we have called him a madman or an asthmatic? 
What he did was clearly wrong, unpardonable and his medical history is clearly relevant to his actions. But it is also wrong for anyone to leap to conclusions, particularly if those conclusions help to reinforce a stigma and a taboo that makes it harder not easier to live with an illness that is commonplace but hugely misunderstood, not least - deliberately because they love to peddle fear - by the media.
I know depressives who are doctors. I know depressives who are dentists. They take medication. They have therapy. They might have been ill once or twice before but now they might be fine. Are we seriously saying - and this is the 'insight' behind those headlines - that this makes them unfit to operate on children, have access to lethal medicines, sharp objects that could kill? Let me tell you this - and throw in another media prejudice while I am at it - we would not have an NHS without immigrants and we would not have an NHS without depressives.
I know teachers who are depressives. If one teacher committed one act of crime in a classroom would we run headlines saying 'why was he allowed to teach?' when it emerged he had been having 'psychological support' for depression? I fear, alas, that with some papers we would.
This is reporting that belongs in the dark ages along with witchcraft. If Lubitz was struggling with a mental health problem he has that in common with millions of us. Soldiers, lawyers and judges, train drivers, engineers, painters and decorators, police officers, bankers, dare I suggest even newspaper editors.
I had a psychotic meltdown in 1986. It was a long time in coming. The newspaper I worked for may or may not have spotted signs but it was probably too late. I ended up arrested and in hospital. I was clearly unfit for work.
I have had bouts of depression on and off ever since, including when I was working in some high pressure situations. Only once did I say to a colleague I did not feel up to doing something I was meant to be doing - a briefing - and I asked my deputy to stand in. On many other occasions, as is clear from my dairies, I was depressed but able to do a difficult job well.
Being a spokesperson and strategist is not the same as being a pilot or a brain surgeon or a teacher with a class full of kids. But the principle is the same.
However there is something I had which many depressives don't. A family who understood. A boss who understood. Colleagues who understood. A great doctor. So I was open. I knew I could be and I knew it would not be held against me. I knew I would not have anyone telling me 'pull yourself together,' but instead people who said 'do you think you should have a rest, see your doctor perhaps?'
I don't know anything about Mr Lubitz's health record and I know enough about the media and coverage of mental illness not to believe what I read in the papers now. But I do know lots of people - I meet them virtually every day of my life just going around the place, especially when campaigning for Time to Change - who tell me that the fear of telling their boss, their family or their doctor about being mentally ill is worse than the illness at times.
Why? Because they fear it won't be understood. Because they fear people will change their attitude and approach to them. Because they fear a boss who sees them as strong and competent will suddenly think they are not up to the job. And who instead struggle through, put themselves at risk of becoming more ill, put others at risk because they might be becoming dangerously ill.
It is the stigma and the taboo surrounding mental health that causes it. A lot of that is born of centuries of fear and misunderstanding and prejudice. But a lot of it is caused by a media that is wilfully ignorant, wilfully distorting, takes one tragic story, a tiny piece of 'knowledge' and builds a construct that tars millions with the same brush and sets back the campaign to deliver what is enshrined in our NHS constitution - parity between understanding and treatment of mental and physical health. We are so far from that it is shaming. And our newspapers have taken us back a little further. Which is why the fight has to go on.

Sore 'tummy'

I am writhing in -not agony...I've been worse- but oh my...
I'd rather not share this but I'm trying to distract myself
...things are getting worse...
I've had that horrid pain in my 'stomach' (I say stomach, but I mean the bits of my body I can't talk about...again...almost all day today I've had this...
..had hot water bottle and bean bag thing on tummy and between legs but it wouldn't even lift a little!!!
I wet myself earlier twice today now..this can't be remotely right...but I'll need MAASSIVE HELP to say to doctor. This has been going on too long. That's more than 15 years I've had this...

Oh my goodness I just want to scream...

I've been to gynae (I need put to sleep because of things in the past that make me freak out and LASH OUT when anyone comes near my gynaecological parts)...


They say there's nothing sinister, which -don't get wrong- is great, but there was something in my notes about something being hit quite 'usual' but that there was nothing to worry about...

Oh man... I just RARRGH!

Someone has written on my file that it's PsYčHøsomatic...

So there's no point in saying to GP again... I guess it's just another bullet in the gun they've placed in my hand anyway...

Tuesday 24 February 2015

Gran ~MAQ

Gran you were an angel
Sent from God above
You set a good example
if patience, joy and love.

God loved His little angel
Mary was her name
and when He called out to her
He was so pleased she came.

He loves you very much
and He of me did ask
To write into a poem
His love for You to grasp.

Dementia took her slowly
She began to grow down in age
Her memories became a muddle
Her mind a great big maze.

Gran always followed His ways
Gently and quietly too
Setting an example
I wish all the world would do

I love my gran and miss her
She did some wonderous deeds
She let His love shine from her
and answered other's needs.

My memories of time spent with her
And radiating Your love from within
Planting seeds of love in other's
Leaves me with a grin

These seeds can grow when planted
In sunshine and in rain
Simply because when they met my gran
She smiled and spoke Your name

She never did this harshly
She simply lived a simple life
Got up, got dressed, made breakfast
Was a loving friend and wife.

The seeds which she helped scatter
Live on and blossom here
She lives with You in spirit
And to me is always near

Gran was a gorgeous angel
She had no wings to view
But here on earth she did Your will
and earned those wings it's true!

Fighting the big fight

Gran's gone -they all are...

...and i'm in a flat, wasting oxygen and money and ruining everything i go near...if i can even get out the door which, for some reason since gran breathed her last i've been a bit over-the-top with positivity about going outside the flat without help and believed i could do it...

...and i can't...

and i just don't want to be here....but how could i be so selfish and put them through another funeral?


i'm such a bitch 
What a completely selfish heartless bitch

People die from terrible things constantly and i am FIGHTING to not destroy myself...

Idiot

i hate myself more than you could imagine...

Tuesday 17 February 2015

My gran passed away

You can shed tears that she is gone
Or you can smile because she has lived
You can close your eyes and pray that she will come back
Or you can open your eyes and see all that she has left
Your heart can be empty because you can’t see her
Or you can be full of the love that you shared
You can turn your back on tomorrow and live yesterday
Or you can be happy for tomorrow because of yesterday
You can remember her and only that she is gone
Or you can cherish her memory and let it live on
You can cry and close your mind, be empty and turn your back
Or you can do what she would want: smile, open your eyes, love and go on.
~David Harkins


Do Not Stand At My Grave and Weep

Do not stand at my grave and weep
I am not there.
I do not sleep.
I am a thousand winds that blow.
I am the diamond glints on snow.
I am the sunlight on ripened grain.
I am the gentle autumn’s rain.
When you awaken in the morning’s hush,
I am the swift uplifting rush
Of quiet birds in circled flight.
I am the soft stars that shine at night.
Do not stand at my grave and cry;
I am not there.
I did not die.
~Mary Frye


Death is Nothing at All

Death is nothing at all
I have only slipped away into the next room
I am I and you are you
Whatever we were to each other
That we are still
Call me by my old familiar name
Speak to me in the easy way you always used
Put no difference into your tone
Wear no forced air of solemnity or sorrow
Laugh as we always laughed
At the little jokes we always enjoyed together
Play, smile, think of me, pray for me
Let my name be ever the household word that it always was
Let it be spoken without effort
Without the ghost of a shadow in it
Life means all that it ever meant
It is the same as it ever was
There is absolute unbroken continuity
What is death but a negligible accident?
Why should I be out of mind
Because I am out of sight?
I am waiting for you for an interval
Somewhere very near
Just around the corner
All is well.
Nothing is past; nothing is lost
One brief moment and all will be as it was before
How we shall laugh at the trouble of parting when we meet again!
~Canon Henry Scott-Holland

 

We Remember Her

When we are weary and in need of strength,
When we are lost and sick at heart,
We remember her.
When we have a joy we crave to share
When we have decisions that are difficult to make
When we have achievements that are based on her
We remember her.
At the blowing of the wind and in the chill of winter
At the opening of the buds and in the rebirth of spring,
We remember her.
At the blueness of the skies and in the warmth of summer
At the rustling of the leaves and in the beauty of autumn,
We remember her.
At the rising of the sun and at its setting,
We remember her.
As long as we live, she too will live
For she is now a part of us,
As we remember her.

~Adapted from the Yizkor Service 


Parable On Immortality

am standing upon the seashore.  A ship at my side spreads her white sails to the morning breeze and starts for the blue ocean.  She is an object of beauty and strength.  I stand and watch until at last she hangs like a speck of white cloud just where the sea and the sky come down to mingle with each other.  Then someone at my side says, “There she goes.”

Gone where?  Gone from my sight…that is all.  She is just as large in mast and hull and spar as she was when she left my side and just as able to bear her load of living freight to the place of destination.  Her diminished size is in me, not in her.  And just at the moment when someone at my side says, “There she goes”, there are other eyes watching her coming and other voices ready to take up the glad shout, “Here she comes!”

~Henry Van Dyke

 

Let Me Go

When I come to the end of the road
And the sun has set for me
I want no rites in a gloom filled room
Why cry for a soul set free?
Miss me a little, but not for long
And not with your head bowed low
Remember the love that once we shared
Miss me, but let me go.
For this is a journey we all must take
And each must go alone.
It’s all part of the master plan
A step on the road to home.
When you are lonely and sick at heart
Go the friends we know.
Laugh at all the things we used to do
Miss me, but let me go.
When I am dead my dearest
Sing no sad songs for me
Plant thou no roses at my head
Nor shady cypress tree
Be the green grass above me
With showers and dewdrops wet
And if thou wilt remember
And if thou wilt, forget.
I shall not see the shadows,
I shall not fear the rain;
I shall not hear the nightingale
Sing on as if in pain;
And dreaming through the twilight
That doth not rise nor set,
Haply I may remember,
And haply may forget.
~Christina Rosetti


Remember

Remember me when I am gone away,
Gone far away into the silent land;
When you can no more hold me by the hand,
Nor I half turn to go yet turning stay.
Remember me when no more day by day
You tell me of our future that you planned:
Only remember me; you understand
It will be late to counsel then or pray.
Yet if you should forget me for a while
And afterwards remember, do not grieve:
For if the darkness and corruption leave
A vestige of the thoughts that once I had,
Better by far you should forget and smile
Than that you should remember and be sad.
~Christina Rosetti


Our memories build a special bridge

When loved ones have to part
To help us feel were with them still
And soothe a grieving heart
They span the years and warm our lives
Preserving ties that bind
Our memories build a special bridge
And bring us peace of mind
~Emily Mathews


There is no night without a dawning

No winter without a spring
And beyond the dark horizon
Our hearts will once more sing ….
For those who leave us for a while
Have only gone away
Out of a restless, care worn world
Into a brighter day
~Helen Steiner Rice


You’ve just walked on ahead of me

And I’ve got to understand
You must release the ones you love
And let go of their hand.
I try and cope the best I can
But I’m missing you so much
If I could only see you
And once more feel your touch.
Yes, you’ve just walked on ahead of me
Don’t worry I’ll be fine
But now and then I swear I feel
Your hand slip into mine.

If I should die before the rest of you
Break not a flower nor inscribe a stone
Nor, when I’m gone, speak in a Sunday voice,
But be the usual selves that I have known.
Weep if you must
Parting is hell.
But life goes on.
So sing as well.
~Joyce Grenfell


***

If I should die and
Leave you here awhile
Be not like others sore undone,
Who keep long vigils
By the silent dust and weep.
For my sake turn again
To life and smile
Nerving thy heart
And trembling hand to do
Something to comfort
Other hearts than thine.
Complete these dear
Unfinished Tasks of mine,
And I, perchance
May therein comfort you.
~Mary Lee Hall


***

When I am dead, my dearest,
Sing no sad songs for me;
Plant thou no roses at my head,
Nor shady cypress tree:
With showers and dewdrops wet;
And if thou wilt, remember,
And if thou wilt, forget..
I shall not see the shadows,
I shall not feel the rain;
I shall not hear the nightingale
Sing on, as if in pain;
And dreaming through the twilight
That doth not rise nor set,
Haply I may remember
And haply may forget.
~Christina Rossetti


***

At every turning of my life
I came across
Good friends,
Friends who stood by me
Even when the time raced me by.
Farewell, farewell
My friends
I smile and
Bid you goodbye.
No, shed no tears
For I need them not
All I need is your smile.
If you feel sad
Do think of me
For that’s what I’ll like.
When you live in the hearts
Of those you love
Remember then
You never die.
~Rabindranath Tagore


Not, how did he die, but how did he live?

Not, how did he die, but how did he live?
Not, what did he gain, but what did he give?
These are the units to measure the worth
Of a man as a man, regardless of his birth.
Nor what was his church, nor what was his creed?
But had he befriended those really in need?
Was he ever ready, with words of good cheer,
To bring back a smile, to banish a tear?
Not what did the sketch in the newspaper say,
But how many were sorry when he passed away?
~Anonymous


***

I carry your heart with me (i carry it in
my heart) i am never without it (anywhere
i go you go, my dear; and whatever is done
by only me is your doing, my darling)
i fear
no fate (for you are my fate, my sweet) i want
no world (for beautiful you are my world, my true)
and it’s you are whatever a moon has always meant
and whatever a sun will always sing is you
here is the deepest secret nobody knows
(here is the root of the root and the bud of the bud
and the sky of a tree called life; which grows
higher than soul can hope or mind can hide)
and this is the wonder that’s keeping the stars apart
i carry your heart (i carry it in my heart)
~e.e.cummings


***

What though the radiance which was once so bright
Be now forever taken from my sight,
Though nothing can bring back the hour
Of splendour in the grass, of glory in the flower;
We will grieve not, rather find
Strength in what remains behind.
~William Wordsworth, Intimations of Immortality


***

And when the stream that overflows has passed,
A consciousness remains upon the silent shore of memory;
Images and precious thoughts that shall not be
And cannot be destroyed.
~William Wordsworth, from The Excursion


A Reflection on an Autumn Day

I took up a handful of grain and let it slip flowing through my fingers, and I said to myself

This is what it is all about. There is no longer any room for pretence. At harvest time the essence is revealed – the straw and chaff are set aside, they have done their job. The grain alone matters – sacks of pure gold.

So it is when a person dies the essence of that person is revealed. At the moment of death a person’s character stands out happy for the person who has forged it well over the years. Then it will not be the great achievement that will matter, nor, how much money or possessions a person has amassed. These like the straw and the chaff, will be left behind. It is what he has made of himself that will matter. Death can take away from us what we have, but it cannot rob us of who we are.


Footprints on the sands of time

Tell me not, in mournful numbers,
Life is but an empty dream! —
For the soul is dead that slumbers,
And things are not what they seem.
Life is real! Life is earnest!
And the grave is not its goal;
Dust thou art, to dust returnest,
Was not spoken of the soul.
Not enjoyment, and not sorrow,
Is our destined end or way;
But to act, that each to-morrow
Find us farther than to-day.
Art is long, and Time is fleeting,
And our hearts, though stout and brave,
Still, like muffled drums, are beating
Funeral marches to the grave.
Trust no Future, howe’er pleasant!
Let the dead Past bury its dead!
Act, — act in the living Present!
Heart within, and God o’erhead!
Lives of great men all remind us
We can make our lives sublime,
And, departing, leave behind us
Footprints on the sands of time;
Footprints, that perhaps another,
Sailing o’er life’s solemn main,
A forlorn and shipwrecked brother,
Seeing, shall take heart again.
Let us, then, be up and doing,
With a heart for any fate;
Still achieving, still pursuing,
Learn to labor and to wait.
Henry Wadsworth Longfellow


***

My candle burns at both ends; It will not last the night; But ah, my foes, and oh, my friends It gives a lovely light!
~Edna St.Vincent Millay


Readings With Faith

“…You would know the secret of death.
But how shall you find it unless you seek it in the heart of life?
The owl whose night-bound eyes are blind unto the day cannot
unveil the mystery of light.
If you would indeed behold the spirit of death,
open your heart wide unto the body of life.
For life and death are one, even as the river and the sea are one.
In the depth of your hopes and desires
lies your silent knowledge of the beyond;
And like seeds dreaming beneath the snow, your heart dreams of spring.
Trust the dreams, for in them is hidden the gate to eternity…

For what is it to die but to stand naked in the wind and to melt into the sun?
And what is it to cease breathing, but to free the breath from its restless tides,
that it may rise and expand and seek God unencumbered?

Only when you drink from the river of silence shall you indeed sing.
And when you have reached the mountain top, then you shall begin to climb.
And when the earth shall claim your limbs, then shall you truly dance…”
~Kahlil Gibran


***

We seem to give them back to Thee, 0 God who gayest them to us.
Yet as Thou didst not lose them in giving,
So do we not lose them by their return.
Not as the world giveth, givest Thou 0 Lover of souls.
What Thou givest Thou takest not away,
For what is Thine is ours also if we are thine.
And life is eternal and love is immortal,
And death is only an horizon,
And an horizon is nothing save the limit of our sight.
Lift us up, strong Son of God that we may see further;
Cleanse our eyes that we may see more clearly;
Draw us closer to Thyself
That we may know ourselves to be nearer to our loved ones who are with Thee.
And while Thou dost prepare a place for us, prepare us also for that happy place,
That where Thou art we may be also for evermore.
~Adapted by Bishop Brent


***

A ship sails and I stand watching till she fades on the horizon and someone at my side says She is gone

Gone where? Gone from my sight, that is all. She is just as large now as when I last saw her. Her diminished size and total loss from my sight is in me, not in her.

And just at the moment when someone at my side says she is gone there are others who are watching her coming over their horizon and other voices take up a glad shout There she comes!

That is what dying is. An horizon and just the limit of our sight. Lift us up, Oh Lord, that we may see further
~Bishop Brent


Irish Blessing

May the roads rise up to meet you,
May the wind be always at your back,
May the sun shine warm upon your face,
May the rains fall soft upon fields
And until we meet again
May God hold you in the palm of his hand.
~Anon


***

Tis only we who grieve
They do not leave
They are not gone
They look upon us still
They walk among the valleys now
They stride upon the hill
Their smile is in the summer sky
Their grace is in the breeze
Their memories whisper in the grass
Their calm is in the trees
Their light is in the winter snow
Their tears are in the rain
Their merriment runs in the brook
Their laughter in the lane
Their gentleness is in the flowers
They sigh in autumn leaves
They do not leave
They are not gone
Tis only we who grieve
If only we could see the splendour of the land
To which our loved ones are called from you and me
We’d understand
If only we could hear the welcome they receive
From old familiar voices all so dear
We would not grieve
If only we could know the reason why they went
We’d smile and wipe away the tears that flow
And wait content.
~Anon


***

When we lose a loved one
Our world just falls apart
We think that we cant carry on
With this broken heart
Everything is different now
You’re upset and you’re annoyed
Your world it seems is shattered
There’s such an awful void
There’s got to be a reason
And we have to understand
God made us and at any time
Hell reach down for our hand
There might not be a warning
We won’t know where or when
The only thing were certain of
Is well meet them once again.
~Anon


Responses for a Burial

Into the darkness and warmth of the earth
We lay you down
Into the sadness and smiles of our memories
We lay you down
Into the cycle of living and dying and rising again
We lay you down
May you rest in peace, in fulfilment, in loving
May you run straight home in God’s embrace
~Ruth Burgess


***

God looked around his garden
And found an empty place,
He then looked down upon the earth
And saw your tired face.
He put his arms around you
And lifted you to rest.
God’s garden must be beautiful
He always takes the best.
He knew that you were suffering
He knew you were in pain.
He knew that you would never
Get well on earth again.
He saw the road was getting rough
And the hills were hard to climb.
So he closed your weary eyelids
And whispered, ‘Peace be Thine’.
It broke our hearts to lose you
But you didn’t go alone,
For part of us went with you
The day God called you home.

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Wednesday 11 February 2015

Restless heart and silence

I like Blessed Mother Teresa's saying about how "everything grows in silence"...spot on! The past few years have been pretty silent for me and sometimes -as with everyone, I'm sure- downright soul destroying ...
That was a term I used to throw about YEARS ago...but now??...oh, I understand it and do NOT USE IT LIGHTLY!!! 

At this moment, I am mid-fight but on the winning side... I refuse to cut myself or do ANY FORM OF SELF HARM...no no no INWOLL NOT GIVE IN TO THESE STUPID THOUGHTS...I *used* to feel better when I did it...but I haven't for a great many years now...

I have a working brain at the moment...and...
So, I'm able to post...

Other times..
Meh, not so much...

So many things try to take the peace and quiet away from me...literally -and when it gets to me...I really DO NOT GROW...

My heart is restless...til I turn to the only one who can help me...

Friday 6 February 2015

Care provisions being cut

5 years since walking unaided  ...feels WAAY longer though I think perhaps because agoraphobia kicked in and my utter inability to sleep for more than 5hours a day...and they're not joined!...
Haven't left the flat alone for nearly 3 weeks...and that includes the bin chute! 😔

Last Friday I left flat (with support worker, but only after MUCH coaxing...to go into lift, down 2 car to get washing out of car boot and put rubbish in big bin at bottom of flats)!!!

Sorry for the rant.. But how is that helpful!!!?! Rargh!!

Being the "old me" is never going to happen, ok, that's fine -and probably for the best...
But I'd like to be able to ... Not be like this...

My support workers are being removed (because it's "not in the budget")...except the company who help me shower...

Ooooh shower...had an assessment done today...assessor is recommending a wet room, rails at bed and extra buzzers...ummm this was PRIOR to my faceplant/toesmash where I broke toes and screamed...(they're not broken for def -not had X-rays or anything, just giant and purple!)

I'm not going for more X-rays...I'll end up with munchausens written in MASSIVE LETTERS all over my medical records or something...pretty sure the wee one is though-it's black now...

Thursday 22 January 2015

I'm an idiot and I need to STOP lending money!!

Having a rubbish day...I'm such an idiot...I loaned A LOT of money to someone I 'met' via facebook (not this group) and I think I've been told a pack of lies...I can't tell anyone I've done this (I did it once before -but it was a new neighbour on the landing and she told me a bunch of lies about having no food and could she borrow just a wee bit so her and her cat -I have one so she knew that would hook me I guess- could eat...over a year later and she's still got £60 of mine...)(social work and housing and community police made a report when I asked them not to...I already had agoraphobia before that...now I can't even go to the bin chute!!!!!)

Anyway I'm sorry for the rant...just trying to not go completely crazy with myself...

Yeah, I've "known" her for 5 years via mental health groups on facebook...she has a wee girl, IS A REAL PERSON (I think...my head's gone all melty now so now I'm questioning phonecalls etc...)...

They were going to get evicted and she spin me a RIGHT GOOD TALE IF IT WAS A TALE!!!

I'm so angry with myself...I'm too much of a pushover...

I'm SUCH an idiot...but I kind of think...well, this is not the first, second, third...you get my point -I don't learn...

I have now...I have no food for me and my cat's not happy with me watering his stuff a wee bit...he's getting bitey...LOL... You've got to laugh, right??

I was ok for money when I leany it to them...but now ...AAARGH I can't handle this -you know when you get to the "I-don't-see-a-tomorrow" point...stupid head!