Thursday, 8 September 2016

CRPS and my mental state have me on the edge

Folks I am so so sorry if this comes across as negative but I've been trapped in my flat for 23 days now. I was officially given a CRPS diagnosis in 2010 -and have a fair few other conditions-1 of which last required hospitalisation last year -the ONLY TIME in more than a decade where I met a doctor who somewhat understood CRPS and gave me a different/extra pain med.) My GP seems to think I'm pretending <I have BPD -borderline personality disorder- and my psychiatrist seems to think they aren't withholding meds but that my BPD just makes me think that they are> I have been FLAT OUT LAUGHED AT by a GP (sadly, this has happened more than once) I don't like calling or bothering people -I don't post on my Facebook anymore because I don't want to bring others down...
You understand, I'm sure, that nobody would pretend to be sore and speak to nobody for more than 3 weeks. This is the worst it has been since I can remember-which I sort of can't today, my brain has melted.

I don't know what to do anymore 

Tuesday, 6 September 2016

Too sore today

I have had CRPS symptoms since I was young and then in Jan 2010 I sledged into a tree, I was formally diagnosed with CRPS in the aftermath. (Doctors in hospital had also spoken about "musculoskeletal" pain/problems/ disorders... Do these things go hand in hand?!)

I also have CFS (Chronic Fatigue Syndrome)/ more commonly known as M.E.

I have been told I am on the maximum painkillers and nerve medications I can be... I spend so many days staring at walls (today is one of them).
Doctors have washed their hands of me.
I no longer call the GP. The impact this isolation is having on my mental health is horrendous. 

Today, the wall is full of monsters. I wish they were real and would just put me out of this pain-filled day. 
People are shouting and swearing outside, come night it turns to fights. Often they are serious and I know of at least a handful of incidents treated as attempted murder, right outside my window. Less than a year since a -sadly, very sadly- 'successful' murder. (Not that I can see outside my window anymore... I just lie here in my body's daft joke with me telling my brain that I am wrapped in flames).
I freakishly wish those who would like to take the life of someone else would just open my door.

Thursday, 1 September 2016

Mother of a Monster

i shook her hand on Sunday. 
i said "peace be with you".
i even addressed her by name when saying it.
i looked her in the eye when shaking her hand.
My mum warned me immediately after she was told the rota had been changed. 

i told my mum that it was fine, that that woman didn't do anything;
that i, in fact, felt kind of sorry for her for knowing that her son was a monster...

But i am not okay now;
It is tearing me apart.

Monday, 29 August 2016

Circumventing the fact that I'm done

What can I do?
I just want to forget...
well, not forget, just not not care or I guess I just want to, I'd say "be normal" but that doesn't exist.
I'm sick of being checked out.
I'm sick of being a burden.

Saturday, 27 August 2016

Pain condition complex medical diagnonsenses YET MY UNDOING IS FROM MY OWN HEAD

I suffer* from a few medical conditions and the greatest hit is my mental health -they are all true but I am close to several people telling me they are not and I am very much struggling to keep my head above the parapet.

*even using the word suffer makes me cringe...ok I can't walk unaided and I'm sore and I don't have a day without pain...but there are people in this world with NOTHING. People starving to death. People so mistreated I could never properly contemplate it. People abandoned LITERALLY at the side of a road, left to die because they have become too difficult for that family to care for...

 

Sunday, 21 August 2016

Thirty three Thoughts

Thirty three thoughts flood my brain, head and mind,
A tear streams from my eye and I wipe it away,
What part of "no!" do you not understand?
Just sit beside me and hold my hand.
Don't talk about my like I'm not in the room,
Inside I am broken, dreadful thoughts loom.
Hanging on to a ledge by the tips of my fingers,
The world crushes many and that thought always lingers,
Complete strangers to me, our paths have never crossed,
A glimpse of a headline; from my heart they're never lost.

Saturday, 6 August 2016

Physics and suicide *pos T*

If all things fall at the same rate and what not, it wouldn't matter how fat i am or how many more floors up i were...
But it does and it will and it would and it's still horrific for too many others - why can't it just be me who gets killed by a maniac and not some nice, innocent, useful, helpful person?